Thank You

The Estopiñan Family


July 5, 2022

 


Dear Family and Friends,


We are so deeply moved by all the continuous support from friends and family throughout this intense journey. We are so proud to have the opportunity to love our boy and enjoy his company at home. TK2 Mitochondrial DNA Depletion Syndrome is a rare disease with little to no chance of survival. Yet thankfully your contributions have truly made the most significant impact in our lives.


Arturito is now 11 which is an unbelievable milestone! Yes, he’s a miracle, our champion, continuously fighting for his life. He knows what his life means to us and how his life also influences approximately 83 families currently dealing with TK2 and others with similar rare diseases. His story inspires many who struggle with medical conditions, his daily successes teach us to Believe and to always have Hope. It’s incredible to imagine that ten years ago doctors told us that he had no chance he’d live. We’ve made huge strides such achieving the transportation vehicle. We also visited the Baltimore Aquarium, attended the Disney on Ice show, and celebrating birthdays and holidays home with family. We know that the love and dedication related to the research and the experimental medications make the world of a difference. We are so very grateful!


Our newest foundation The Estopinan TK2 Medical Treatment Foundation, Inc was created to contribute funds and finding of our research to parents also struggling with this terrible fatal disease. Like Arturito, other children have shown significant signs of improvement after taking the experimental drugs. These drugs help increased mobility and energy levels. Arturito’s outcomes are being monitored and recording setting record breaking discoveries throughout these past several years. The benefits from the research can affect all the TK2 diagnosed children and their families. We know how devastating the struggle is to find the means to get treatment. Our Foundation highlights the efforts and dedication provided by the research, we are living testimony, and we are here to provide all our TK2 families HOPE.


The studies continue to require funding as we are still in the early stages of development with many unanswered questions. Throughout this journey, our goal is to find a cure. We sincerely appreciate your contributions and support spreading the word. Although this reality is very sad, we have focused on finding solutions while helping families around the world and contributing to medical science. Thank you for helping us get closer to reaching our goals.

 

God Bless,

Olga and Art Estopinan 


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