TK2 CURES

Experiencing the Baltimore National Aquarium with our little guy was beyond Amazing! Special thank you to the staff and members of the Make a Wish Foundation and to the Baltimore Aquarium. 

We were honored to have met our goal to purchase the used Nissan van necessary to transport Arturito to his medical appointments.  It is a huge accomplishment to have a safe convenient method of transportation.  Thank you so much to all of our contributors.  

An American doctor offering to treat critically-ill baby Charlie Gard can be named for the first time as Michio Hirano.

The judge leading a High Court hearing over the 11-month-old's future today lifted an order which had previously barred UK media from identifying doctors involved in the case.

"What this gentleman is saying is totally, 100 percent false. My son has been on a ventilator for five years. He's getting stronger. When he got home four years ago, he couldn't move anything--only his eyes. Now, he can move his hands, he can move his feet, he can move his fingers. He's a happy boy. Sir, you are totally, 100 percent wrong." 

Arturo Estpiñán es un niño con una enfermedad similar a la de Charlie Grad. Dialogamos con el padre de este pequeño.

Art appeared on today’s Good Morning Britain to praise Donald Trump for offering to help Charlie, who suffers with mitochondrial depletion syndrome.

President Trump reached out to Charlie’s parents, Chris and Connie, to offer his support yesterday saying he would “be delighted” to help the tot.

In questi giorno ho letto parecchi articoli sul caso di Charlie Gard e quello dell’americano Arturito Estopiñan nei quali si sostiene che abbiano la stessa malattia. Ecco cosa riporta La Stampa il 5 luglio 2017

The father of a little boy who has a similar type of mitochondrial depletion syndrome as Charlie Gard is speaking out in defense of Gard’s grieving parents, saying he believes they should have the right to fight for their son’s treatment — and survival.

Art Estopinan has blasted the UK authorities for not letting 10-month-old Charlie travel to the US for experimental treatment. Art and wife Olga believe their six-year-old “would be dead by now” if he had lived in the UK instead of the US. Art Jr was given two months to live in 2011, but six years later is a happy, strong boy.

Here in the U.S., Arthur and Olga Estoinan believe their six-year-old son Arturito “would surely be dead by now” if he had not been given access to the same treatment Charlie’s parents are fighting to secure. Arturito has a similar mitochondrial depletion syndrome as Charlie and was the first person in the U.S. to be given the ground-breaking nucleoside therapy. 

Roma - Un ospedale americano pronto a spedire a Londra una terapia sperimentale per tentare di allungare la vita del piccolo Charlie. Ne dà notizia la Bbc, secondo cui il NewYork-Presbyterian Hospital si è anche offerto di accogliere il neonato di 11 mesi ricoverato al Great Ormond Street Hospital nella capitale britannica, qualora si risolvessero gli «ostacoli legali» emersi nei giorni scorsi. La notizia arriva nel giorno in cui il presidente americano Donald Trump dovrebbe fare pressioni sulla premier britannica Theresa May ai margini di un incontro bilaterale al G20 di Amburgo, per chiederle di intervenire per evitare che i medici inglesi stacchino la spina a Charlie.

The situation gained attention from Pope Francis as well as President Trump, with Trump tweeting Monday that if the United States could help, "we would be delighted to do so."

The mitochondrial DNA depletion syndrome causes progressive muscle weakness and brain damage. Charlie is only the 16th person in the world ever to have been diagnosed with the condition.

Arturito muove le mani e i piedi, fa segno di sì e di no con la testa, schiocca la lingua quando vuole qualcosa. E sorride. Olga, la sua mamma, non pensava che avrebbe mai visto il giorno in cui il bambino, oggi di sei anni, sarebbe tornato a gioire di una passeggiata al parco, di una bolla di sapone, un aquilone nel cielo.

The tragic story of a 10-month old British baby who is on life support in a London hospital has focused a spotlight on an often-fatal rare genetic disease called mitochondrial DNA depletion syndrome. The case even caught the attention of President Trump on Monday, who tweeted that “if we can help” the boy, Charlie Gard, “we would be delighted to do so.”

Arthur, 51, a Government Consultant, said: “We feel very fortunate to be American and not British – because if we lived in the UK Arturito would surely be dead by now. We are beyond shocked that doctors in the UK are saying Charlie should “die with dignity”.

“How insensitive when there is a treatment which could save Charlie’s life and eminent doctors in the US who are willing to help him.”

Art earlier had praised Donald Trump on Good Morning Britain for "saving" Charlie after he offered free care to the terminally ill youngster.

World News: Scottish Daily Mail.  The torment of of Charlie Gard has brought promise of help from around the world.

More than 15 million sick children need Congress to act before Sept. 30. Unless Congress acts before it goes on recess, it will be neglecting a vital resource in the nation’s ongoing research into drugs for rare pediatric diseases.

When Chris Gard and Connie Yates first began fighting for their son Charlie’s life, Estopinan and his wife Olga put them in touch with a doctor who had helped their son, who was the first to receive the experimental treatment called nucleoside therapy in the United States.