Es uno de solo 52 casos en el mundo entero. Necesita oxígeno y máquinas que descongestionan sus vías respiratorias cada 4 horas todos los días.
Thank you for taking a look at my family photo album, and for help me fight the TK2 disease with your contribution to the Columbia Medical Research Center !
My special One True Wish was to visit the Baltimore Aquarium ! I went there with my parents, Granny Olga and my cousins, thanks to the Make A Wish fondation. I had such a great time ! Mike posted the photos and videos on our dedicated Flickr album, take a look !