Parents' Outreach

A case for Parents' Outreach 

Since he was diagnosed with this rare TK2 syndrome, Arturito's parents Arthur and Olga, have not only fought for the little boy's life; they are totally committed to increase awareness of rare diseases. 

Their story has reached the American media and beyond to other kids with TK2 syndrome around the world.

This is their story. You can help today. Make a donation. 

Arturito Estopinan, 2013

Arturito's parents remain optimistic that someday there will be a cure for their son. 

Parents like us

September 2015 - Washington Post Jorge Ribas made this video on Arturito's parents struggle to find help fighting diseases that don't attract much amount of research or specialized funding. It also shows how determined parents can forge a path for other families encountering similar obstacles. An estimated 25 million Americans suffer from about 7,000 rare diseases.      

Other children like Arturito fight rare diseases, like young Maxwell Smith.

You Can HELP !

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Thank you for helping Columbia University to fight TK2 Deficiency and Mitochondrial Disease. 

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